HealthDataWatch — May 2026 Recap
If you work with data like I do, 2026 has probably already been a big year (TW: AI commentary 😅).
As a statistical programmer and epidemiologist who is not a software developer, the tools at my disposal have never felt more powerful or accessible - at least for now. After the step-change in performance of AI tools late last year (especially for writing code), many of my most time-consuming and error-prone tasks seemed to vanish overnight (albeit replaced by existential anxiety).
My clients, sometimes experts in specialized fields of medicine and social sciences, used to rely on students or consultants (like me) to clean and analyze data in what was effectively a black box. Now, they are advancing their own work in ways that weren't possible before. They're showing up with rapid iterations, ideas that could only come from deep in the weeds - and yes, the dreaded "vibe coded" app. My post-graduate training taught me that appropriate, well-considered statistical analysis was next to impossible. So basically, I'm terrified. But the newfound enthusiasm among clients and colleagues is contagious and I can't help but feel it too.
Now, will big data live up to the hype on LinkedIn? Is doomsday à la Pluribus inevitable? I don't think anyone knows. What I do know? If this technology can be harnessed responsibly and ethically for truth-finding, I'll support that. And to me, that starts with thinking about data - data that is often collected from ordinary people without their knowledge (fine print doesn't count) who don't benefit from it directly. I have been privileged to work with rich and so-called "real-world" data like insurance claims and medical records, which are inaccessible and unaffordable for anyone working outside of certain niches. Even though there are good reasons to restrict access (privacy), many who might use it for good - junior researchers, policy makers, advocates, journalists - are left in the dark.
This newsletter aims to shine a light onto free and accessible health-related data sources in Canada. Maybe something you learn here will help answer a question, make a connection, or spark a new idea. At very least, I hope to share appreciation for the researchers, public servants, and patients who have been behind datasets like these long before they represented a paycheck for big tech.
Here's what came out last month. And no, this isn't AI - I just ❤️ the "-".
- Rhiannon
New numbers 📊
Health & Disease
- Infectious Disease — May-29/26: PHAC Tuberculosis disease surveillance [Data exploration tool]
- Substance Use — May-28/26: CIHI Canada’s mental health and substance use workforce [Report]
- Infectious Disease — May-28/26: PHAC FoodNet Canada - Enteric Disease Surveillance [Data exploration tool]
- Mental Health — May-26/26: PHAC Suicide, self-harm, and suicide-related behaviours in Canada [Data exploration tool]
- Infectious Disease — May-26/26: PHAC Seasonal Respiratory Vaccination Coverage Survey (SRVCS) [Data exploration tool]
- Aging — May-25/26: PHAC Health inequalities in older adults (65 years and older) in Canada [Report]
- Infectious Disease — May-13/26: PHAC Human emerging respiratory pathogens bulletin [Report]
- Infectious Disease — May-6/26: PHAC Hepatitis C treatment trends in Canada, 2012-2025 [Report]
- Population Health — May-6/26: StatCan Health characteristics, two-year period estimates, census metropolitan areas and population centres [Data exploration tool]
- Infectious Disease — May-4/26: PHAC Creutzfeldt-Jakob disease (CJD) in Canada [Data exploration tool]
Health Services & Benefits
- May-14/26: CIHI Hospital Beds, 2024–2025 [Dataset · XLSX]
- May-14/26: CIHI Formulary Coverage in the Pharmaceutical Data Tool [Dataset · XLSX]
Society, Community & Well-being
- Employment — May-19/26: StatCan Employment characteristics for persons with and without disabilities, annual [Data exploration tool]
- Quality of Life — May-8/26: StatCan Quality of life in Canada [Data exploration tool]
Vital Statistics
- Mortality — May-25/26: PHAC Canadian mortality clock [Data exploration tool]